William is still not tolerating solid food at all and so far has only managed to go 2 days without throwing up. We are still feeding him via a syringe and have been flavouring the high energy feed with milkshake powder to make it a bit more interesting (flavoured milk has been ordered!).
Despite this he is still so so happy! He's spent what feels like most of the month at The Chestnut Tree who have been amazing! He is there now as they were brilliant and offered us 2 extra nights so we've had a nice bit of respite. He absolutely loves it there spending time in the sensory room and going for trips up the lane to see the calves. His little face lights up when we get there and its lovely when he gets really excited to see us when we go back to collect him!
We went back to School for parents last week for the first time since before easter. William was amazing, he seemed to know why we were there and settled into work (cleverly disguised as play) straight away. It was the best session hes had there so far. He managed to tolerate sitting straight away and made no fuss about sitting on the stool which is a first!
But the best thing was when he was lying on his back, he was so interested in everything and really tried to do what was asked of him. He managed to hold a peice of silver paper in both hands and we were encouranging him to bring it over his face and play peek-a-boo and he didnt need any help to do it, I wa saying ready stead go and he was pulling it down to see me and then getting a big smile on his face as he knew he'd done well! Brilliant!
Then he had to hold a small hoop with both hands and managed to keep hold of it for a good few minutes which was impressive in itself but not as impressive as this... Chris the group leader had a stick and was collecting the hoops on it, he saw his friend Tom put the hoop on the stick and when it came to his turn he immediately let go with one hand and pushed the hoop towards chris and straight onto the stick. I was gob-smacked and so was Chris!
Definately the best session so far!
He's now had his sleep system delivered but the delivery man knew nothing about setting it up so its still in its box in our hall. Well we've only waiting about a year since trying the first system so why not let us wait a bit longer hey!
And still no news on adaptions for his chair despite chasing Chailey up numerous times, hopefuly things will happen soon as although we manage with him sitting on our laps at home he is starting to get a bit tall for his buggy so we're going to need something for out and about soon!
The auction is going really well so far and loads of lovely things have been offered so hopefully once bidding opens on May 14th we may have a lot of interest, we were even in our local paper this week trying to promote it...
Bidding on the general auction is all on our facebook page www.facebook.com/pleasehelpustohelpwilliam if you look at the photo album just find something you want to bid on and leave a comment on the photo with your bid. Bidding is open 8am 14th may until 6pm 21st May.
We also have a special auction on where you can bid on a holiday to Turkey, Williams great-uncle Tony has donated a 5 night stay in his penthouse in Instanbul along with flights with Easyjet. Bidding started at £500 and we have had a bid but you can bid until 14th May 6pm. Full details on our facebook page.
I am so overwhelmed by how generous everyone has been so a massive thank you to everyone who has donated something for the auction, spread the word about it and promoted our facebook page. One lovely lady even wrote a blog about us on her company website, you can read it here Gumigem Blog
I'm now off to collect William from The Chestnut Tree,
Thanks for reading!
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