Seizures :(

Sorry but think it best to warn you that this may not turn out to be a very positive update today.  William has just spent the day in Worthing hospital after having a big seizure at nursery this morning.  It came as quite a shock today as he has been so well and happy but he had a seizure that lasted 8 1/2 minutes - the longest one yet -  so an ambulance was called for him and we all took a trip in it to the hospital.

By the time the ambulance got to him at the nursery he had come out of the seizure so they didnt do much other that monitor him and check his temperature etc.  Thought it was best we went to hospital just incase though and we spent the day waiting to have his meds adjusted.  Turns out he's put on almost a whole kilo in the past fortnight so he's basically grown out of his sodium valproate dosage!  We thought he'd put on weight but had no idea it was that much!  Just goes to show that the gastrostomy is definately working!

So the meds have been adjusted and some rescue medication has been prescribed for him to have at nursery as no doubt it will happen again :(   The paediatrician is considering a course of steroids to try and get on top of the seizures but as William hasnt had chickenpox yet we can't start them just yet.  If he did get chickenpox whilst he was on the steriods it could be really dangerous.  So he is being vaccinated against it next week which is great for the steriods option and even better because it means he wont have to suffer the pox - yipeeee!!

He had a good time at the hospital though and found it very very funny to model a new hat...



Until todays episode things had been going really well.  The gastrostomy and new milk has made such a difference and we even managed a few lovely days out for the first time since he was a tiny baby.  His vomiting meant that we couldn't go out for more than a few hours as we couldnt risk feeding him in public as he would vomit 9 times out of 10.  Now he's rarely sick and when he is its no where near as traumatic for him or us! 

We had 2 lovely family days out last week, the first one in Brighton at the sealife centre which William enjoyed for the first 20 minutes or so, after that he started getting a bit tired and it was a bit much for him but we enjoyed it!  To be honest I think he was more interested in flirting with the girls than he was in looking at the fish...

We also took him to Marwell Zoo for a lovely day out and spent the whole day there, William slept through a lot of it but we had such a lovely day and even called into Portsmouth on the way home for dinner.  That day William had 2 meals in public and wasn't sick - such a novelty for us and such a refreshing change!  Here he is on a cannon in Portsmouth which he found very amusing!

And because of the gastrostomy and the change in Williams feeding and general happiness I was able to leave him for a whole afternoon/evening with his daddy at the weekend while I went to see Take That with the girls.  Before Kev would have realy struggled to feed him as William really only fed well with me so it would have been quite stressful for both of them but they had a lovely boys night in and I had a fab time too!  Thank you Kev!

Only a few more weeks left until our trip to Brainwave so we'll probably update again when we get back unless theres any news before then!