Tuesday 31 July 2012

Hip hip not hooray!

Well it's been a hectic week or so and there's a few bits of news to report about William. 

First off we went up to The Evalina Childrens hospital in london last week about Williams hips. They were really good up there, he had another x-ray and we were seen by 2 surgeons and a physiotherapist.  The result of the appointment is that as suspected, William does have to have major surgery on his hips. His right hip is already a problem in that it is coming out of the socket as it's not developed properly as William doesn't weight bear but we hadn't expected the surgeon to want to operate on his left as well. Apparently it is better if they do both at the same time. So sometime next year he will have the op, we don't know when but as he is not in any discomfort with it they are in no hurry and in the meantime we can continue as normal. It is quite major surgery and I'm not entirely clued up on the ins and outs but from what I gathered from the doctor, they will be cutting away some bone, moving some muscles and then putting it all back together. So William will be in hospital for at least 5 nights with the first one after the op being in intensive care as there is a risk of chest infection afterwards. All very scary and not very nice to look forward to at all. :(

Other news and somewhat better is that we have asked to be referred to the trike clinic at Chailey heritage. They will try William in some special trikes and then make any adaptions that need to be done so that he can go out on his trike!! Sounds fab! We will have to buy the trike but Chailey will do any adaptions that need to be done so that is good. So once weve been to the clinic and chosen something for him we will probably have to start fundraising to pay for it!! 

William has been very interested in the Olympics this week!! He's been loving waving his union flag in support of team GB, there's a video on his Facebook page if you want to see him being amazing and not only managing to hold the flag but also wave it when I asked him to!  Very clever boy!!

Lots of phone calls to wheelchair services over the last few weeks and guess what... Still no wheelchair!! I wont bore you with the ins and outs but needless to say, their service is still shocking!!

That's all for now, keep you updated!!

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